THIN BASEMENT MEMBRANE NEPHROPATHY (TMBD AKA BENIGN FAMILIAL HEMATURIA)

ORGANIZATIONS RELATED TO HEMATURIA, BENIGN, FAMILIAL

• American Kidney Fund, Inc.
  • 6110 Executive Boulevard
  • Suite. 1010
  • Rockville, MD 20852 USA
  • Phone #: 301-881-3052
  • 800 #: 800-638-8299
  • e-mail: mdemelo@kidneyfund.org
  • Home page: http://www.kidneyfund.org
• American Urological Association Foundation
  • 1000 Corporate Blvd
  • Suite 401
  • Linthicum, MD 21090 USA
  • Phone #: 410-689-3700
  • 800 #: 866-746-4282
  • e-mail: auafoundation@auafoundation.org
  • Home page: http://www.urologyhealth.org/auafhome.asp
• Genetic and Rare Diseases (GARD) Information Center
  • PO Box 8126
  • Gaithersburg, MD 20898-8126
  • Phone #: 301-251-4925
  • 800 #: 888-205-2311
  • e-mail: N/A
  • Home page: http://rarediseases.info.nih.gov/GARD/
• Kidney & Urology Foundation of America, Inc.
  • 2 West 47th Street
  • Suite 401
  • New York, NY 10036
  • Phone #: 212-629-9770
  • 800 #: 800-633-6628
  • e-mail: info@kidneyurology.org
  • Home page: http://www.kidneyurology.org
• Madisons Foundation
  • PO Box 241956
  • Los Angeles, CA 90024
  • Phone #: 310-264-0826
  • 800 #: N/A
  • e-mail: getinfo@madisonsfoundation.org
  • Home page: http://www.madisonsfoundation.org
• March of Dimes Birth Defects Foundation
  • 1275 Mamaroneck Avenue
  • White Plains, NY 10605
  • Phone #: 914-997-4488
  • 800 #: 888-663-4637
  • e-mail: Askus@marchofdimes.com
  • Home page: http://www.marchofdimes.com
• MUMS National Parent-to-Parent Network
  • 150 Custer Court
  • Green Bay, WI 54301-1243 USA
  • Phone #: 920-336-5333
  • 800 #: 877-336-5333
  • e-mail: mums@netnet.net
  • Home page: http://www.netnet.net/mums/
• National Kidney Foundation
  • 30 East 33rd Street
  • New York, NY 10016
  • Phone #: 212-889-2210
  • 800 #: 800-622-9010
  • e-mail: info@kidney.org
  • Home page: http://www.kidney.org
• NIH/National Kidney and Urologic Diseases Information Clearinghouse
  • 3 Information Way
  • Bethesda, MD 20892-3580
  • Phone #: N/A
  • 800 #: 800-891-5390
  • e-mail: nkudic@info.niddk.nih.gov
  • Home page: http://www.kidney.niddk.nih.gov/

The information in NORD’s Rare Disease Database is for educational purposes only. It should never be used for diagnostic or treatment purposes. If you have questions regarding a medical condition, always seek the advice of your physician or other qualified health professional. NORD’s reports provide a brief overview of rare diseases. For more specific information, we encourage you to contact your personal physician or the agencies listed as “Resources” on this report.

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

Copyright 1989, 1995, 1997, 2005